About Pseudomyxoma Survivor

Pseudomyxoma Survivor is a non-profit organization, run by patients and caregivers. We have a thriving support community providing emotional support to anyone whose life has been touched by pseudomyxoma peritonei (PMP) as well as appendix cancer and other peritoneal surface malignancies. As these diseases are so rare is so rare, having a global presence gives the community a scale where it is able to offer genuine support and advice around the clock – both emotional and practical. Patients, caregivers and families have joined together to create an online ‘family’.

Together we:

• offer practical and emotional advice on managing symptoms and all aspects of living with this rare disease
• manage a one-to-one buddy system
• fund small grants to help patients and caregivers with the impact of treatment
• support research

As a non-profit organisation, we’re completely dependent on voluntary donations. We’re too small to have offices or staff; the charity is run entirely by volunteers. Our patron is Sean Hepburn Ferrer. Sean’s mother, Audrey Hepburn, passed away shortly after being diagnosed with PMP. Sean also has a special interest in rare diseases more generally and is Rare Disease Day Ambassador for Eurordis and NORD.

Our patron is Sean Hepburn Ferrer. Sean’s mother, Audrey Hepburn, passed away shortly after being diagnosed with PMP. Sean also has a special interest in rare diseases more generally and is Rare Disease Day Ambassador for Eurordis and NORD, the European and North American rare disease organisations.

Apply for a charity place

There's an entry fee of £30 for our charity places and we do ask that you pledge to raise a minimum level of sponsorship. Don't worry though, we will, of course, be here to help every step of the way to make reaching your target as easy as possible.

Half Marathon - £300

10k - £150

Already have a place?

If you have your own place, then you don't need to worry about pledging the sponsorship targets above and we'd love to have you on the team! Please do let us know if you have a place and would like to support Pseudomyxoma Survivor and if you raise over £50, you will also receive a Pseudomyxoma Survivor technical running top to wear.

We look forward to hearing from you!